Wednesday, July 29, 2009

Further News

Hello Again!
I am going to try to update daily.
We will see how this goes.
Today was a rough day.
Adam has several wonderful specialists weighing in on his case.
They seem to come in the morning and then order tests.
The infectious disease specialist- who is WONDERFUL!- cam in early.
He was hopeful that Adam could have a few weeks of aggressive antibiotic therapy to try to reduce the infection.
He seemed to feel that would be the best scenario for all.
The cardiology team came and did his esophageal echo.
This was a much better test to measure all of the heart. We were all concerned about the damage the infection had caused.
They also felt this would give a better picture of ALL of the heart.
It did.
Unfortunately, it showed a congenative defect in his aortic valve.
They had uncovered this yesterday, but weren't sure of the extent.
This finding, added to the mitral valve infection, means surgery.
Later today the cardiac surgeon came in.
He is recommending open heart surgery by the end of the week.
He wants to make sure that Adam has the best health when he is operated on, and he is in good health now.
He has had no pain and few symptoms.
Needless to say, we are very scared.
We were so hopeful he'd have some time before such a major surgery.
Adam is hoping to convince his team to delay until Monday.
I will let you know how that goes.
In the meantime, please keep up the prayers.
It is hard for Adam to be treated like an invalid.
He feels pretty good!
In addition, the information he is getting is overwhelming.
He was at work Friday! and just felt tired.
It is hard to go from flu- like to open heart in 48 hours.
Pray for patience and peace for him.
Pray for his medical team.
They are stellar.
They are very aware that Adam is young and has a long life to live.
They are being very conscientious and aggressive.
We love that!
Pray for their continued skill and guidance.
Pray for friends and family.
It is so hard to not know what is going on or what is next.
I can't keep up with it all, and I am here.
Pray for patience and peace.

And, pray for thanksgiving.
We feel covered in prayer.
Adam is getting help in a world renowned facility with amazing doctors.
Friends have visited, brought food, let out the dog and been so supportive.
Others have called for references for doctors and networked to make sure I am asking the right questions to get the best care.
John has been a rock! for both Adam and I.
His medical experience has driven us to ask better questions and push for answers.
He has held me while I cried more times than I can count!
We can't imagine doing this alone.
We are so incredibly thankful for all of this.

So, that's it for today.
I'm gonna sign off to hit it again tomorrow.
Very gratefully,
Val

2 comments:

  1. Val & Adam -- may you be engulfed in a peace that defies all understanding. Love, Nancy B

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  2. Adam and Val, You are in my prayers.
    Love you both
    Your other Mom...

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