Week 5

Yep! can you believe it?!
Adam had his surgery 5 weeks ago Monday.
He is healing well.
His scar is beginning to smooth out.
At the family gathering Monday the kids were very interested in seeing it.
My nephew Ramsey, has been very curious about how God can be in Adam's heart if they had to open it up.
He wondered if God would be at the cookout, since Adam was.
This whole thing is hard for grown ups to understand, let alone kids!
He met with his surgeon, Dr Schier, yesterday.
All went well.
I told him thank you for making Adam one of his miracles.
He blushed..but how does a mom express thanks for something so big?!
He sees his cardiologist tomorrow.
She will follow him for the rest of his life.
She will be the one giving him direction and making sure his blood levels are good.
They continue to improve as he regains strength.
He is supposed to have his PIC line pulled after his IV antibiotic tomorrow.
He can't wait!
He will be able to have a full shower and 'get his golf swing back.'
He will still need a culture drawn after 2 weeks to make sure he's in the clear.
Apparently bacteria 'likes' this type of valve.
We can do without 'friends' like that!
Next week he begins to 'work back into' work.
He is targeting 3 days next week, then 4, then 5.
I imagine he will be tired.
He still takes naps after working out at cardiac rehab.
I think now is when the reality of the past 6 weeks hits home.
The miracle of life is so precious!
Our God granted many prayers during this process.
I am not sure what he has in store for Adam, but I am sure it's special!
Your support has been life changing for both of us.
Thanks aren't enough, but I mean them sincerely.
Very appreciatively,
Val

wed afternoon

I just read Adam's blog.
Can you believe it?!
Our first post was in July- it is now September.
In some ways it feels like a lifetime (IE. new wrinkles, lack of sleep etc).
In other ways just a moment.
There are so many things to be thankful for!
Adam drove yesterday- after 2 months
Adam is sleeping 8-10 hours at a time
Adam and I had a good belly laugh this morning- without pain!
Adam is looking forward to returning to his life- a life we weren't sure he'd have a month ago.
And.. drum roll..
Adam's mom is GETTING MARRIED!
Can you stand it?!
My faithful, strong, loving and patient John proposed while we were in Boston.
Well,,, and HOT! as you can see by the picture above.
It was romantic and perfect, and a surprise to me.
I said YES!!!
There are no dates yet.
We are just soaking this all in.
It is such a gift!
I know this is a blog about Adam's health, but I wanted to share this good news with you faithful friends.
After such a dark time, I want to share some of our 'good stuff'.
God is so good!through it all.
Val

Finally the end in sight

Hey guys just wanted to update you all. I went to my IV and rehab today and I will officially have my picline pulled next Wednesday after IV therapy. This of course it good news because that means I can start working on my short game for golf next year. The doc is very optimistic about progress and will give me the clean bacteria bill of health after my appointment on the 23rd. I also meet next week with my surgeon Dr. Schier and my cardiologist Dr. Fetters so that they can release me. This is all in efforts to get me back to work by the week of the 14th. Again for those who do not know I am doing a heart walk on September 19th. It is one of those donation things so any help anyone would like to contribute would be great. The walk is 3 miles and it is downtown by the canal. As you all know I am trying to become more of an evangelist for heart help so tell everyone you know about my case. Well don't have a whole lot more to say other than the regular season opens in a week from Sunday and I am hoping for another solid year for the Colts. I will get to go to a few games this year and am stoked about that. Well see you all soon and I will try and update this a little more frequently because I know some of you are reading it a lot. Thanks again for the support and help.


Adam

Weekend Update

Things are finally good after the Wednesday scare. Mom is out of town in Boston and hopefully enjoying herself and the company of John and her friends. Grandma is here today and Danny in this week. I finally got the PS3 hooked up to the flat screen right and have been doing some serious gaming today. Health is doing well all but three stery strips are off the incision now and I am actually feeling good enough to do my hair in the mornings. All of your support has really been awesome and the food has helped us out tremendously. For those wondering I am still awaiting an updated INR and Hemoglobin probably next week sometime. Met a nice person at the IV today and it made the time go by quicker as grandma was reading her book. Well not much to report which is a good thing. Can't wait to get back into work on the 15th of September. See you all soon



Adam

Wed

Hey!
It is Wednesday evening.
Adam just took a shower, so we could show GJan how to waterproof his PIC line.
She is in charge for a couple of days, then Uncle Danny.
I am headed out of town for a long weekend.
Adam continues to do well.
He is upping his time on the treadmill, and lowering his pain meds.
He slept for 10 hours last night.
Healing sleep is such a gift!
The neighbor stopped us to say how much improvement they've seen in his walking.
His INR responded to the meds... a little too much.
We certainly have to be careful what we pray for!
So, now he skips the coumadin a couple of days and re- tests.
Because of his age, they say it may take a while to stabilize.
He has also had a couple of episodes of rapid heart rate.
Luckily, one of these happened while on the treadmill today.
The cardiac therapist was able to 'run a strip' so the cardiologist could read it.
They have started a new med to try to regulate his heart beat.
The MD says the irregular beat isn't dangerous, just tiring.
Luckily, he is in the MD daily for IV's and in rehab 3 X a week.
They are able to see even small responses to meds.
We are daily reminded of his excellent care, his incredible physicians, supportive friends and family (yes, still bringing in meals for us!)and God's grace.
We appreciate your continued thoughts and prayers!
Val
PS. the picture has NOTHING to do with Adam's progress..its even a couple of years old,but still fun..GO COLTS!

A new week begins

Back to the grind today and a second week of rehab. I started the morning with my normal IV an then headed over to rehab where they had me do 20 minutes two different times on the treadmill and 4 minutes on the boke. It is funny how your legs can get so dead so quickly. It seems like not that long ago I was able to max out a leg press machine and ride a bike for a good amount of time. Now four minutes is all I can muster. Things are good though my hempglobin is up to 10 and my INR is up to 1.9. Doctors are still optimistic which makes me just want to do more everyday. I asked today about when I would be able to golf, and to that my rehab coordinator laughed and said next spring. I however did get some exercises to loosen my shoulder stiffness and hope to beat her goal and play late this year. Mom leaves this weekend for Boston and I am finally cleared to go into public so that is a good thing. I got a haircut today and for those who know me, you know how I was chomping at the bit to get it cut. I am starting to feel better everyday with a few setbacks here or there. All is well in Indiana and it is starting to get to Chili weather. I have had lots of good food from you all and have had time to work some things that I had been meaning to try myself. I signed up for a grilling class that teaches some pitmasters barbecue secrets in Spetember and am excited about that. I am posting this picture for you who have not seen my wound. Scar is not bad and hopefully I will gain weight soon. Well thanks for tuning in to my life and ttyl.


Adam

Thursday

Hello!
Well, we did it again.
I thought Adam posted, he thought I did..
Go figure!
We had U Verse installed, G Jan came to visit and I had a job interview.
It was a big day!
Adam continues to progress.
He gets stronger every day.
His treadmill time is increasing.
He is making new 'friends' at rehab.
This morning he actually felt like shaving and using 'product' in his hair!
You KNOW he is beginning to feel like himself.
I am so thakful for all of your notes, comments, food and phone calls.
This has been rough journy..I am glad we aren't making it alone.
I hope you all know how much you mean to both of us!
Adam has some blood work tomorrow.
We are praying for an upswing in his INR.
That is a biggie for his new valves.
We will keep you posted.
Have a super day!
Val

First Day of Rehab

Okay so today was my forst day of rehab and it went well. I am not sure it is going to be good for my ego though because they continue to tell me how great I am doing. The old Adam is kind of coming back and sometimes I just wanna say of course I am do you know who I am lol. Body feels great and sleeping is getting longer every night. The only thing I really need to get a hold on now is my INR numbers. For those who don't speak doctor nerd that number is the one that has to do with how thin my blood is. I am currently at a 1.5 and they want me at a 3. So we are kind of perplexed about why this is happening. Other than that the ticker is doing good and I loved watching Tiger get housed yesterday in the open. I have been able to catch up with some old friends with all the downtime and that has been really nice. My playstation is getting a serious workout now because I just had to go and get the new Madden. I feel kind of old when I think about how far the graphics and gameplay have come on video games. It is kinda scary hopw much I get into them still, but at least it keeps me occupied. Well offer is still open for those who want to come and see me. When at rehab today I saw a packet for the heart walk on Spetember 19. I am going to ask tomorrow if I would be able to participate. Even though it is a fast lofy goal I think it is an important cause and would love to try and be part of it somehow. Well hope all is well with everyone and thanks for reading the blog today.



Adam

Saturday update

So its now Saturday and I have been home five days. I am starting to finally adjust and slowly be able to talk on the phone for longer than five minutes. I found out yesterday that I have about another week and a half or so of only being able to sleep for two to three hours at a time. This is sometimes frustrating but I am finding out that is almost perfect because the percocet makes me sweat at night. I think I can now recite almost the whole Michael Vick press conference or give anyone the views of both parties on the new health care reform. I am walking about a quarter mile a day now and very anxious for rehab to turn me loose a little more so that I can stretch it out. Dizziness is subsiding and pain is still in my chest but overall I am feeling so much better than even a few days ago. I talked to a lady today at my IV treatment who had surgery six weeks ago and she was very positive and told me to not get discouraged. It is funny how god puts your heart at a place where people you would normally brush off or not listen to you suddenly hang on their words and appreciate the support. I am going to try and setup or work with an organization for better child and young adult physicals and am currently thinking of ideas and ways to go about it. This experience has taught me so much not only about the heart but about myself and I really want to share that knowledge with everyone. I am figuring I should take it all one week at a time though and concentrate on my rehab and start doing something about it starting in a few weeks. If any of you know organizations that already advocate this it would be a great help if you shared them with me. Mom has been so great through all of this and I think she is happy to help, but if any of you have time to come relieve her or help her out I think she could use the free time. Even though I am the center of her world I sometimes think it can get to be a bit much. Again, I am sure I sound like a broken record, but I am so thankful for all of your support and prayers and look forward to being able to repay you all for your help. I think this whole experience has mad me more self aware and I just want to make an indelible impression (that is for you Cory) on the world so that everybody does not have to experience the nightmare I have had to go through. Well I hope to get to the store soon so that I can visit some co-workers and be proud to walk through the door under my own power. Until tomorrow thank you all and god bless.



Adam

Friday morn

Hi All!
We oops 'ed yesterday..I thought Adam posted and he thought I did.
All is still progressing well.
Our day starts with a trip to the infectious disease office.
He gets his antibiotics.
I used the time yesterday to run to the grocery.
It turns out he can't be alone for a few more weeks.
I guess its in case of potential falls, etc.
Needless to say, it's a challenge to keep up with the outside world.
Praise God! for folks who have come and 'spelled me.'
Uncle Dave and Friend Doris helped out this week.
Not only do I get to run to the store, Adam gets someone else to talk to.
He is pretty bored.
After the MD visit we usually take a quick walk.
He is supposed to walk 4 times a day- but not in over 80 degree weather.
It's August,find me a 70 degree day!
And, no public places..too many germs.
Adam trys to get a shower in somewhere.
He has to have me in the same room for another week.
Water on back only, antibacterial soap, scrub front- but no direct water on incision.. well you get the drift.
It's a lot to keep straight.
The website Friend Kathleen started has been an answer to prayer.
It's at www.whatfriendsdo.com, under Adam Hensley.
It allows friends to schedule dinners to be brought to the house.
It's kind of fun to see what we get.
It really helps me, as I am doing a lot of running up and down stairs right now.
Praises for friends, continued prayer support and continued healing..he gets stronger every day!
Continued prayers for patience, strength and restful sleep.
Neither of us are getting much sleep right now.
In the grand scheme, these are small things.
Thanks for the continued posts, prayers and support!
Val

New routine on day 2

So I have now been home for a day and am getting used to my new routine. The food is certainly much better and mom is pretty attentive sometimes maybe too much, but that is to be expected. This morning had a appointment to get my IV and sat next to a lady that hacked up a dew lungs. It was kind of interesting because they don't want me an many public places in fear of me getting sick. Hmmm but in an infectious disease clinic is cool. Still trying to get my bearings and sometimes it feels a little like jail. I know it is all for the best but it can still get old. Sleeping was an adventure last night because it is new to try and lay flat. Hoping that sometime soon I can get a release and maybe be able to go into public again. The cubs are great and all but after 20 food network shows and the cubs blowing another lead it gets really boring. Have yet to master the new football game yet though so maybe I will try that later today. Sorry again I have not called any of you but sometimes talking a lot gets tiring. Visitors are welcome over at the house now as long as you make an appointment with mom. lol I will try and post some more hospital pics as I get them. Here is one of me and my morphine pump. Strange how you don't feel pain when you get that every 6 minutes.

I am back in the real world

Hello all
I am finally back home and so stoked about it that I can't even put it into words. I have so far enjoyed an exciting day of watching ESPN and taking a nap. (Onyx was by my side) I am so thankful for all of you and your prayers through all of this. I am just starting my recovery and am very excited about that too. It seems wild that a little over a week ago we were all worried if I was going to be here and now in a few days I will be walking on a treadmill. My only real explanation can be god. I also want to let you all know how great school has been. I spoke with Renee early this week and they have credited me my classes and are granting me a leave while I get back on my feet. So as you can tell I am starting off this new chapter on a great foot. I will, in time, be able to call most of you back but it is a lot just to get up and down stairs for now. So thank you for your continued support and patience and I can't wait until I get back to me again. Until next time thanks again for the support and keep the prayers coming. P.S this pic is pre surgery when I was starting to feel my feet.




Adam

Tues

Adam is going home!
They are giving his last dose of antibiotic right now.
He is so psyched..so am I.
This begins his next phase of recovery.
He will do daily IV meds at Dr Bouchan office.
He will do 3 times a week cardiac rehab starting Monday.
His showers have to be on the back only- no direct water to the chest.
He can't lift more than 10 lbs.
To be honest, its a pretty long list.
But, at least it will be at home.
It has been a long, but blessed, road so far.
It's been amazing to watch Adam's impact on others.
I was just stopped in the cafeteria by a tech that saw him on admittance.
He wondered how he was doing and made some suggestions about home care.
It had been 2 weeks and probably 50 patients since he saw Adam!
This blog has made it easy to update folks far away.
Trying to maintain the phones was impossible.
I can't thank you enough for keeping an eye on his progress, and praying every day.
I will continue to post for a while.
They will still be limiting his visitors to a few day.
Apparently the risk of infection is a biggie over the next few weeks.
The blog is probably the easiest way to keep friends and family posted on progress.
God is Good!
Val

Mon morn

It's the beginning of a new week.
I slept at home last night.
I kept thinking, 'Why don't the nurses fix Adam's IV?'
It was my alarm clock.
My, how our world has changed!.
Adam had a rough night.
His BP was up and the nurses were concerned.
They came in to monitor him every 2 hours.
That started a cycle that probably helped drive it higher.
By this morning, he was wound pretty tight.
The MD came in.
He is feeling fine about everything.
Adam continues to progress.
His blood levels are starting to rise.
His appetite and activity levels are good.
He is gaining weight.
His night sweats are greatly reduced.
Th main reason for caution is the blood thinner.
They want to make sure it exactly where it should be for home maintenance.
The MD says a valve replacement is one of their most complex surgeries.
Two valves is incredibly complicated.
They want to be very cautious with Adam.
So, we wait.
He said probably Tues or Wed.
We continue to feel the prayer blanket surrounding us.
It is greatly appreciated.
Praise today for the blood levels finally coming up and for the gifted doctors that care for Adam.
The list of blessings is truly endless.
God is Good!
Val

Sun. Eve

Big Day!
Adam had his shower this evening!
He wasn't happy with the water pressure or the heat, but it was wet.
He has to stand with the water on his back and let the water run down.
He can't get direct water on his chest.
It sounds a little weird, but actually worked fine.
He certainly smells better.
We were introduced to what living with blood thinners will be like.
When we were walking Doris the the elevator, I noticed blood on his gown.
We pulled it up and noticed this stomach was bleeding.
He had a shot at noon today, and it just started bleeding again this 5 hours later.
I am just thankful things like that are happening while we are still here.
The nurses do a nice job of explaining everything to Adam so he knows what to expect.
John and I were able to get some of the stuff at the house done.
We cleaned and treated the pool (2 weeks!) and moved some furniture.
We had several storms so the yard needed some work.
I haven't slept at home since the surgery, so things were backing up.
My dear friends hired a cleaning lady.
What a treat! The whole house looks good.
Adam is doing so much better.
He is walking 300+ yards at a time, several times a day.
His pain is much better controlled.
I am planning to go home and sleep in my own bed tonight.
Like I said, big day!
We again had many milestones and many blessings.
Prayers continue to be answered and blessings granted.
Life is Good (my favorite clothing line) has a whole new meaning!
Adios!
Val

Sunday morning

Happy Sunday!
Adam is doing well.
He hit a wall lst night with the 'hospital food.'
I think he's just getting a bit stir crazy.
In my prayers this morning, I asked for the wire to come out easliy.
One of the nurses said, 'We don't want to tug too heard, because we might take a piece of the heart with it.'
Nice!
If it didn't come out, they were comfortable just cutting it off and leaving it there.
I wasn't!
They said it wasn't common, but it happens.
Dr Salerno came in this morning and pulled it right out.
Another blessing, another Praise God!
On the bummer side, it looks like he will be here until Tuesday.
They need to get his blood thinners figured out.
His blood went too thin with the first dose, and too thick with the second.
It sounds like the three bears and goldilocks.
We are looking for 'just right.'
He's bummed.
I'm gonna run and get him some food from the outside world.
We continue to count blessings.
My sister Charn and I were discussing it last night.
It feels like every day there is an obvious presence of God in this journey.
Every day there is another answer to prayer.
He is walking well, we are controlling the pain and getting taste buds back.
All blessings!
Thanks for the continued prayer.
God is Good!
Val

Sat Aft

It's been a good day so far.
Adam is eating and doesn't seem to have any more stomach problems.
He is doing his exercises and waking his 'laps.'
The nurse came in to pull his pacemaker leads this morning.
One came out easily.
The other was 'stuck,' and they didn't want to pull it.
She says sometimes they get 'stuck around a rib or something.'
It's not something you want to dwell on, or the 'yuck' factor gets too high.
They felt like walking around today might loosen it.
Isn't that a lovely thought?
We are really just coming off some pretty overwhelming thanksgiving right now.
It's been such a fast pace that it's all starting to sink in.
I just continue to feel this blanket of prayer covering Adam.
There is a whole new level of meaning to the word 'blessing' in my life.
There are more than can be counted, that's for sure.
Val

Sat morn

Happy Saturday!
Adam is progressing well.
They are taking off meds, stopping IV's and moving him around.
He is also beginning to taste food.
It's funny, but these are everyday things we used to take for granted.
As far as rehab, they are progress.
He walked the 'lap' this morning.
He needed to do that to go home.
He will now have 2 full days to gain strength and stability while he walks.
They are targeting Monday or Tuesday to release him.
We both got sleep last night.
There was an 8 hour stretch with only one interruption.
What a gift!
It's amazing how much energy that gives a person.
It's now about getting the right combo of meds, getting his blood count up, increasing activity and controlling the pain.
Those are easy things compared to what he has already overcome.
Praise God!
More later,
Val

Friday mid day

Hi!
I am banned from the room.
I figured I'd update the blog, because I am here alone and can't go far.
They are putting in a PIC line right now.
They approach it like a surgical procedure.
They sterilize the room and use ultrasound to make sure of the correct placement.
This will allow for a semi- permanent IV.
It can stay in for up to a year and will allow for blood draws, daily IV antibiotics and showers.
It's another step towards home.
He still isn't able to shower.
His pacemaker is gone, but the electrical lines are still in.
His blood is too thin to risk taking them out just yet.
They say there's no hurry..maybe Monday.
I can't imagine how good the first shower will feel.
It's been almost 2 weeks!
It's crazy the things we took for granted.
Maybe that is what we are supposed to be learning from all this.
Until later,
Val

Friday morning

Good Morning!
So far, Adam is tracking like they predicted.
The worst days were 2 and 3.
Yesterday was better, in that had 2 periods of time where he was up and walking.
He started taste food last night.
This morning he had cereal.
All of these are good things.
Adam had lost so much weight before surgery that his strength is diminished.
They really want him to eat to help get the energy back.
It also helps with the nausea.
It seems like when all of the meds are in his stomach at once, they churn too much.
Food help dilute all of that.
So, we hope today is progressively better.
His Cardiac Rehab folks were in yesterday.
He is walking more.
They've started talking about discharge plans.
It looks like probably Monday or Tuesday.
He is doing remarkably well, but they want a few more days to balance a few things.
His Md said 5 days fro bypass is speedy, 7 for valve replacement,
the fact that he had 2 replaced, makes them want to err on the more conservative side.
They still need to figure out pain meds, coumadin levels, blood count and nutrition.
Every day it all gets better, but not ready to be let go.
I am supportive of that.
Uncle Dave brought down a recliner yesterday.
Rehab says they are the most comfortable in the early weeks.
Adam is psyched because it has a cup holder for his remotes.
I had a wonderful surprise yesterday- non health related.
Lillie-my teen aged interpreter from our Mexico mission trip-called from Mexico.
Lillie started interpreting for me when she was 8.
She is fluent in Spanish and I am so not.
I was to have left with a team last Sunday.
It is a trip I've taken for several years.
We work with a sister church near Playa del Carmen.
Lillie updated me on the church, the people and the team.
It is going well.
I was so pleased to hear from them.
While I know I am needed more here, the mission had been on my mind.
What a blessing! to have that touch from afar.
Our Mexican church is in prayer for Adam too.
So many things to be thankful for today!
Blessings for Lynsey's safe travel home, Adam's returned taste buds, Adam's returning personality, our ZPC mission trip and family and friends who support us through this journey.
God is so good!
Until later.
Val

Thurs aft.

Hi!
It's a nice quiet afternoon here.
We both just took a nap while watching TV for a while.
Adam had visitors this morning, and actually felt like waking up and talking to them.
It sounds so crazy to say that!
We've always taken for granted that he will talk to everyone.
It's nice to begin to see some of the normal again.
I feel bad that he has had visitors he never really saw.
But each played a part of this precious journey in Adam's life.
I am getting a break every day at least once.
Last night Doris came up for a while, so we could go shower.
Today it was Dave and Tiana.
This evening it will be Charmayne..tomorrow Laurie.
Mom, Danny,John, Ross..many more..we are so blessed!
The list is long, and the thanksgiving for each is hard to express.
We have also had friends bring food over.
It has been such a treat.
My family members have been able to eat at the end of the day.
I usually pack a container to bring back here to eat.
I feel so blessed that I'm not having to eat all junk fast food.
I don't think Adam and I both need the nausea!
Actually, his nausea is better this afternoon.
Another prayer answered.
It seems like there are so many answered, I am losing count.
I believe each individual prayer is playing a part in his recovery.
Even the 30 second one, the passing thought during a busy day, that last moment before we fall asleep... each one a beam of light that only God can see.
It's amazing what we can do when we all pray together, huh?
Off to watch him sleep.
Val
PS..no food from you Boo-unless it's Taco Bell!jk

Thurs morn

Good Morning!
It's Thursday- day 4.
Yesterday went about as expected.
They seem to have found a combo of meds that are working for the pain.
He walked across the hall and back last night.
He is also doing his rehab exercises a lot.
I will look over and he will be moving his head or knees.
When I ask if he's OK he says,'I'm just doing my exercises.'
He's really owning his progress.
He knows all of his meds, when he should take them and which ones he reacts to.
We got 2 stretches of 'mommy sleep' last night.
Mommy sleep is what my friends call it when you sleep for a while, your child wakes you up for something, then you go back to sleep.
Usually its a glass of water, not pain meds, but the same idea applies.
He actually watched TV last night.
He was commenting on the news.
It's good to see him come back little by little.
They are stopping his external pacemaker today.
They changed his diet.
These are all progress steps and good signs.
They are all blessings, and I believe, answered prayers.
The food thing is still a challenge.
Today will be a lot of 'putting him through his paces,' Dr Schier says.
It is also the day Saint Lynsey leaves.
Prayers today for continued milestones, control of pain, and safe travels for Lyns back to MN.
Special prayers of thanks for all of the support we feel.
God is Good!
Val

Wed eve

Hi All!
I've been busy writing that book..lol
My short term memory is shot due to lack of sleep.
I am pretty sure the long term one was gone before this all happened.
I am thinking we'd better not plan on any advance from the publisher!
Adam's day was about what we expected.
There seems to be a balance between getting the pain under control and getting an oral option.
Morphine works, but is IV.
Oxycodione didn't work, but is oral.
Today we had a few going at different intervals.
I have faith they will figure it out, but it is hard to watch.
Most of the family has gone home.
They will be drifting in and out as we move forward toward rehab.
I don't want to waer anyone out yet.
We will have weeks of rehab in our future!
Saint Lynsey will leave tomorrow.
I will be lost without her..not to mention Adam.
She is just what he has needed.
She is a good supportive friend and yet pushes him a little.
What a special friendship they have!
Adam was up in the chair today a few times.
He is doing great with his breathing and exercises.
He had 2 units of blood this morning.
His color perked up after the first unit.
That was so good to see!
We will see what his blood count is in the morning.
I hope it is on the rise.
The next big hurdle is food.
He has no appetite, and nothing tastes right.
He told me to stop saying jello, he is tired of it.
I should have an update in the morning.
His progress is so good, I am betting he will be going home before Monday.
Our blessings today are for his continued progress, his stable vitals, his lack of fever (infection) and that day 2 is ALMOST over.
They tell me tomorrow is much easier.
I will keep you posted.
Val

Wed.morning

Day 3..we've been told it's the roughest, as far as pain.
So far we agree.
Saint Lynsey( my new name for her)took the night shift.
It was a rough one.
It started last evening and really didn't stop.
He is in a lot of pain and they are trying to work out the right combo of meds.
The doctors, and Saint Lynsey, say he's been waiting too long to ask for it.
As far as his healing, he is on track.
We've already seen a few of his MD's this morning, and reports are good.
The infection is responding to the meds.
The new bionic (I know, that dates me) valves are working well.
He has been out of bed several times.
Our goal today is to get him to eat.
He doesn't want to, but he has to in order keep up.
He is getting a blood transfusion this morning.
They held off as long as they could.
With his age, they had hoped he'd bring his blood levels up on his own.
Unfortunately, he didn't.
I am really OK with it.
The work they do now to 'sanitize' the blood and filter its donors is good.
He was so weak, that I'm not sure how he would have progressed without it.
So, we begin the 'busy' day.
He will be up with cardiac rehab 4 times today.
They walk him, do breathing and muscle exercises.
Then he will sleep.
Then wake him up for another round.
Then sleep.
It's a routine we will learn to know well, but its progress.
I can't thank you all enough for the support.
The blog comments really help sustain me.
We all feel so separated from the rest of the world.
Your comment make me feel like we are all in this together.
Adam is going to crap (sorry GJan) when he can read AND comprehend all of them.
He is one lucky man!
Praise God! for his surgery success.
Praise God! for his progress.
Praise God! for his young age and strength as we approach the roughest day toward his going home.
And honestly, Praise God for all of you.
Again, many blessings to be thankful for.
God is Good!
Val

Tuesday afternoon

All,
Adam was moved to a regular room.
It is good news.
Last night he was pretty funny with his ice chips and orange juice.
We are trying to write down what he said, so we can tell him later.
Ross and I were belly laughing about his love of OJ.
As a mom, I have to admit it scares me.
He just went from one nurse to one patient ratio, to one nurse to four patient ratio.
The attention level is very different.
I know, they wouldn't do it if he wasn't ready...
This morning was a whirlwind.
They started taking off things about 8.30.
He had an arterial line, his schwann (sp?) line, several IV meds and his catheter taken off/out.
They got him up in a chair for an hour.
Then they came and got his dad and I to take him to his new room.
He walked to a wheelchair, we rolled down the hall a ways, then walked into his new room.
I looked at the clock and realized he'd only been out of surgery for 24 hours!
It's crazy!
At the same time, he is young and doing very well.
His vitals seem to be stable.
He is off the morphine drip and on oral pain pills.
He is nauseated.
We think that will get better as he gets more in his stomach.
He has asked one of us to stay in the room with him.
We are all just taking turns.
He isn't able to lift more than 10 lbs.
That means he can't use his arms to push himself up in bed.
It's just a slow process of learning to do everything differently.
We are starting to run out of gas here.
It's good to have these milestones, but hard to watch the pain.
It really helps to check the blog and read the comments.
It makes us feel less isolated from the rest of the world.
I can't wait for Adam to read them all!
The next goal is solid food and a 25 yard walk.
He's done them all so far.
I am sure he will get these milestones too.
Pray for strength, for patience and for pain relief.
I sure feel the support.
I think he does too.
Val

Tuesday morning

Good Morning!
I just noticed the time stamps.
As far as my posts, they aren't correct.
No worries, I just don't want you all to think I am blogging at 1 am!
It's day 2.
Lynsey and I stayed here at the hospital last night.
Although he has great care, a 15 minute drive felt too far.
We will take a break when the relief crew (family) arrives this morning.
Adam had a bit of a rough night.
It is all adjusting and tests and measuring and...
Well, it's hard.
He is waking up and more aware of all they are doing.
He didn't get much sleep.
He is very thirsty because of the anesthesia.
His doctor allowed him to go ahead and drink what he wanted.
His stomach wasn't as ready as he was.
He threw up about 4 am.
He said it hurt, and the wound seeped.
I can't imagine!
His heart is doing fine and tolerating the reduction of all of the meds, so far.
He still has that irregular beat every so often.
They are keeping him on an external pacemaker.
They aren't sure if it's post-op, or more long term.
Time will tell, but in the meantime the pacmaker helps him rest.
They got him to the side of the bed, and even on his own legs for a minute or two.
He was dizzy, but made it.
These baby steps are all milestones right now.
They are going to try to get him in the chair for breakfast in a couple of hours.
He wants his glasses for that.
I'm hoping his asking for that shows his head is clearing a bit.
We were noticing a lot more clarity in his conversation last night.
I am sure today will be a big one for all of us.
The milestones are all steps toward his recovery.
The prayers continue to be felt by all of us.
It's a relief to just rest in the Lord and let him do his will with Adam.
I couldn't do that without so much supportive prayer.
I thank you for that.
Val

So far, so good!

All,
Adam is doing well.
They took the incubation tube out after 1 1/2 hours.
That's pretty amazing!
The average is more like 6 hours.
The nurse said he was pretty adamant about getting it out.
He has talked to us..although super groggy.
His vital signs are all stable.
We were all able to go in and see him.
His first words were, 'Hey guys, I made it."
I can't imagine sweeter words to hear!
There was such a rush of thanksgiving and praise.
Overall the surgery went fairly fast, about 4 1/2 hours.
We were just saying that the power of prayer is an amazing thing.
We could feel its presence.
We are now just waiting.
These first 24 hours are a big hurdle.
Then it will be the next 48, and so on.
They will get him up and 'dangle' later this afternoon.
They hope to get him to walk to his new room tomorrow.
All based on his status, of course.
The family is LOVING reading the comments on the blog.
In one way, we are all in this little world away from everything and focused on Adam.
In another, we feel all of you so close.
All we have to do is log on.
Guess what Mindy and Glenn? (our blogger guru's) blogging is cool!
We will go back soon and tell Adam about all of your kind thoughts and prayers.
Take a moment right now, and say a word of thanks.
God is good!
Val

Good News!

All,
We just got out of our consultation.
The surgery is over.
Adam is stable.
He has 2 new valves, both aortic and mitral.
He is having a few irregular beats, but the surgeon is watching it.
His blood pressure is already better.
Apparently his heart was pretty enlarged from years of added workload.
Again, and answer to prayer that we got him in when we did..
Wel Danny did.
Thanks for the CONSTANT prayer all morning.
Please dont stop, as the next 24 hours are key.
BUT!!!the big hurdle is over.
I will update later.
Praise God!
He is good!
Val

Mid morning Monday

All,
We just got a mid surgery update.
He is doing fine.
They have replaced the mitral valve and are warming him up to see how he does.
Then they will go to the replacement of the aortic valve.
I had so hoped it could be repaired.
This means he will be on blood thinners for life and anti rejection drugs for a year.
It will be a lot of life changes for all of us.
But, let's focus on the blessings.
Surgery is going well.
This is an answer to prayer.
He is surrounded by a team of amazing doctors.
A blessing...
He is probably 1/2 way through.
Another blessing...
I will check in as we hear more.
The prayers mean more than I can say.
Keep them coming!
Val

Monday morning

All,
They took Adam back at 6.30 this morning.
He was scared, but in good spirits.
We had a nice prayer with the hospital clergy.
We were able to walk with him.
He gave us the rock and roll sign and off he went.
CRAZY!
So now we wait.
Our missions pastor was just here to pray.
We feel so blessed and covered in prayer.
I will post as we hear.
It will be a long day.
Val

Sunday night

Hi all!
We are winding down here.
They are coming to get him at 6.30 tomorrow morning.
We want to be there to pray before he goes.
I have had so many people ask what they can do.
Here's my request...
Take 30 seconds- or more- and say a prayer for Adam at 6 am (only if you are up).
Say another at 8.
That is when surgery starts.
If you can take 30 seconds every half hour, it's be great.
I know its a lot to ask.
You might not be able to do it all.
But I figure, hey, I have to ask. It's for my baby boy...
The power of prayer can make anything happen.
Let's all pray for the doctors and staff, the family and friends(near and far)
and Adam.
We will feel them.
I promise!
More tomorrow.
Val

Sunday afternoon

Hi All!
He is sleeping right now.
He has had a low key morning.
We picked up his friend Lyndsay last night.
She flew in from MN.
Mark, Lyndsey and I have been hanging today.
His little brother Aaron and his uncle Ross will be in later today.
He has had a lot of well wishers, both local and remote.
All appreciated.
Reading the comments about the multiple prayer chains, all over the US, is so comforting.
The cardiologist was in this morning.
She- Dr Fetters- is very kind and patient.
He is beginning to get feeling back in his feet and they tingle.
I asked if I could use my pedicure foot bath.
She laughed and said sure.
She laughed again and said she'd never been asked that before.
Another example of Adam being exceptional..
We used it earlier.
He said it felt good.
We tried to take a picture- for future blackmail purposes- but can't figure how to post it.
Hopefully we can get that done while he is still unable to kill us!
I am sure any part of him being clean felt good.
He hasn't been able to take a shower for a week.
It's crazy, but we are really just watching the clock move.
It's so clear that he is ready for this- medically and psychologically.
He told the pastor he was at peace with whatever was in store.
He said if the worst happens, at least people could learn from his case.
Both of the valves have audible regurgitation.
Lots of students have come in to listen to his heart.
He was even telling one student where to put the stethescope to get the best sound.
While it is hard to hear his acceptance, I couldn't be prouder.
I have to keep reminding myself that God gave him to us and he was his child first.
He knows what is best for Adam, and will help get the all of us through this.
Gonna head back up now,
Val

Sunday Morning

Good Morning!

It's Sunday..one day before surgery.

I am thankful it's tomorrow.

Adam is getting tired.

Last night he had to get some oxygen and some meds because 'his heart hurt.'

That's the first time he has had pain.

Again, I am thankful Uncle Danny got him in here when he did.

It's obvious his heart is wearing out.

He probably had too many visitors yesterday.

Again, a blessing that he has such support!

Unfortunately, they said his heart rate went up at one point when his room was full.

It's hard because its so good to see his personality and sense of humor come back.

I think we get tricked into thinking he's on the mend.

The hard truth is he is very sick.

The surgery will be long, probably 5-6 hours.

They are going to start with the mitral valve.

It's the one with the 'vegetation' on it.

I have to say, I don't know if I will look at a garden the same again!

If the valve is reparable, the will do it.

They will then move to the aortic valve.

The aortic is the one with the defect he had when he was born.

He would hope to then repair that valve.

Repairing takes longer during surgery, but is better in the long run.

Dr Schier said that if they can't repair the mitral, they will just replace both.

He told Adam that he wouldn't be a good poker player with the mechanical valves.

Apparently, when his heart speeds up you will hear clicking.

That would definitely be the tip- off of a royal flush!

With any valve replacement there will be anti- resistance drugs for a year or so.

He will also be on coumadin- a blood thinner- for life.

The cardiac rehab folks were in yesterday.

They said the exercises are easier if they practice before hand and the patient isn't sore.

They showed him how to get out of bed and the exercises he will have to do to after surgery.

He will not be able to lift more than 10 lbs. for 3 months.

As the nurse says, 'that is the size of a cat.'

It is obvious we are in for a drastic change in lifestyle in the Hensley household!

Again, we are so thankful he got the help when he did.

As you read, Adam was on the blog last night.

He is enjoying the comments.

We especially appreciate the continued prayer.

I expect today to be emotional.

Pray for strength for us.

Also for patience for the folks we may have to not let in to visit.

And mostly peace.

We just want Adam to go into surgery rested and ready to work with the doctors toward the best outcome.

As my small group says, its going to have to be a "God thing' because this is bigger than we can handle alone.

More later,

Val

Hey Guys

Hey guys I figured I would give mom a break. It is Saturday night and I am bored. Contrary to some of your possible beliefs I am so ready for this surgery. You can't even imagine what it is like just sitting in the same spot knowing you need a new heart and watching TV. Funny how something we all wish for such as just going home and watching the tube or being lazy can be the one thing I know dread the most. Visits and prayers have been very nice and I want to thank you all for them. I know some of you are still afraid for me but just know that I am not. Remember it's me I tend to defy odds one way or another. Procedure seems to be as routine as can be expected and just understand that I will be out in no time screaming at the TV and the Colts. Hope you all are doing well.


Adam

Sat. Morning

OK..I have to admit.. this blogging thing is good.
Both Mark and I are thankful for the streamlined communication.
The pastor from my church has been a blogger for a while.
After prayer yesterday he said, "welcome to the blog world."
I don't have his skill with words, but the convenience is awesome.
Adam is doing better.
He (and all of us) are so touched by the comments here.
It makes Adam smile when he reads the words from friends, family, co- workers, high school friends....
If you feel like adding a comment, go for it, it's kind of fun.
He keeps telling his cardiologist, Dr Fetters, he can't wait to do back flips again.
I don't remember that he could do that before..but hey...miracles do happen!
I will settle for that silly grin and some energy again.
It's good to know he has high aspirations.
They took him up for his pre-surgery chest xray this morning.
They've also started doing an antibiotic in his nose- to help ward off bugs during surgery.
Fun stuff!
He has been so blessed with visitors.
They really help make his day.
It's been fun to share stories with everyone.
I'd forgotten a lot, and didn't know others.
Believe me, I'm glad I didn't know some of the stories before.
It's weird how we get little blessings.
The pastor from St. James in Marion was here yesterday.
He shared a few verses with us.
I've been clinging to one for the past few weeks.
I had been talking about this verse even before Adam was admitted.
That's where he started.
Coincidence..I don't think so.
He read Phil. 4:8
"Finally brethren, whatever things are true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of good report, if there is any virtue and if there is anything praiseworthy- meditate on these things."
It really helps focus on the positive.
That's what we need right now.
If you pray, we appreciate it!
God is good! and he's answering all of the time.
If you believe in karma, this will help generate the good stuff.
If you are into kind thought, I'm asking for them.
All are needed, felt and appreciated right now.
More later,
Val

Friday eve

Hi All!
We just got the news..Monday morning surgery.
I have to say, it's pretty scary.
Hearing that your 29 year old son is going into open heart surgury is surreal.
I am glad both Mark and I were still in the room when the doctor came in.
The doctors decided that he will have had 7 days of antibiotics by then.
They feel there is no need to wait.
So, 7 am he goes with them.
8 am they will probably start.
It will take 5 hours or so.
His surgeon, John Schier, is really good.
I told him to get lots of rest this weekend..could I make him dinner? coffee? lol
He says they will try to repair the valves, if possible.
He won't know till they get in there.
If it isn't possible, they will replace both valves.
He is looking at 4 weeks of daily IV antibiotics after surgery.
If the valves are replaces, he will be on multiple meds.
He is young and otherwise healthy, so they are very optimistic.
Your thoughts and prayers are so appreciated right now.
We do feel a sense of their presence.
It's pretty weird-in a good way.
The room he is in now has no restrictions on visitors.
He is enjoying many friends and family.
Mark and I decided to limit to family only on Sunday.
There are an awful lot of people on both sides, and we want him to get rest.
This is really hard, because EVERYONE has been so great.
I promise to update the blog as often as I can.
All for now,
Val

Friday afternoon

Hello All!
It's Friday afternoon.
He was able to read his blog last night.
I can't tell you how much it means to all of us to read the comments.
I know it is hard to NOT know what is going on.
His dad says many have called from AZ.
Adam is so touched by everyone's concern.
Adam was moved to a 'step-down' room last night.
He is so psyched because he has a bathroom!
It even has a window.
His infectious disease specialist asked who he knew to be so hooked up?
He is really doing well.
He is still in no pain.
What a blessing that is!
They have narrowed the infection down and are upping the antibiotics.
It turns out that his initial antibiotic was working too.
I'd say that is another answered prayer, a blessing.
He told his cardiologist that he was feeling better.
He said when the air conditioner went on last night he felt it on his skin.
He didn't realize how long that had been.
Another blessing...
We have had visits from several ministers.
We have had several prayers with Adam.
Each somehow saying the right thing, with the right scripture.
Another blessing..
Adam has had a lot of visitors.
It has been nice for him.
His work friends, family, and church members all make his day.
Another blessing...
I have to think as we get closer to surgery that will be even more important.
I wouldn't want the time to think!
His attitude is amazing.
He told our pastor that he was at peace with this path.
He says he's happy that so many will learn from his symptoms and maybe he can help others in the future.
Wow!
I have to say that is a bit humbling for me.
I, for one, would prefer a bit less learning on my son.
We keep waiting for the surgeon to give us the date and time of the surgery.
I will post as soon as we know..
I want him COVERED in prayer..as I know he will be.
All for now,
Val

I am still alive

Hey guys,
It is so awesome that all of you are commenting and leaving notes. This is the first time I ahve been able to get on and comment. I am using moms log in so that my lazyness doesnt have to create a sign in. I want you all to know these doctors here and these anti biotics are doing a number on my bacteria. I am sure most of you have read moms part about what is going on. Just know I am in great spirits and am at peace with god no matter what he has in store for me. In true Adam fashion I am a medical anomoly and have been told so by many specialists. This journey is one that I truly am excited about my new life. I am going to truly try and be more positive.

Luv ya all

Thursday am. 7-30
Good Morning!
I am hanging out in CCU at St. V's watching Adam sleep.
Watching him sleep is something I've done his whole life.
I remember sitting at his bedside through new teeth, high fevers, tough math tests, girlfriend break-ups and many of life's ups and downs.
I never dreamed I'd be watching him sleep while we wait for open heart surgery!
It's overwhelming, to say the least.
Our day began with the Infectious Disease Specialist.
He is so good!
He actually lives in our neighborhood!
It's funny how these little connections make you feel better.
The new antibiotic they started is more targeted toward his specific infection.
He will need 4 weeks of daily infusions even after therapy.
The good news is the doctors office is close to our house.
He had a really good nurse last night.
It turns out she has had open heart surgery.
They had a nice talk about what he should expect.
Another little connection...another little blessing..
We are waiting to hear a firm day for the surgery.
I will post as soon as we get confirmation.
Prayers are such a gift right now.
I can't possibly keep up with all who care.
Praise God for that number!
Know that we need every individual prayer, we feel them and are looking at a long road of healing.
So, today's requests would be for strength, for patience and for his heart.
We are praying he makes it to surgery without a 'chunk' of that infection breaking off.
They aren't sure where it might go...lungs..brain..fingers...toes..
None are good.
I find myself reacting to every increase in heart rate or drop in oxygen saturation.
When I start to panic- every minute- I try to remember that God is in control.
Giving up control is a tough one for me..
You can see why we both need prayer.
All for now,
Val

Today...

Hello All!
I am hoping this BLOG will make it easier to communicate.
I know Adam would love to hear from you.
It's hard for me to remember who all has called and what they say.
What a gift that is!
The news today was what we had prayed for.
They are looking to put the surgery off until early next week.
We will know the exact day tomorrow.
It is dependant on the cardiac surgeon's schedule.
He is so good! Adam and I both have complete faith in his skills.
Our network (who knew we had a network in cardiology?!) gave him a huge thumbs up.
Our infectious disease specialist (again, who knew?!and super talented) has narrowed this bug down to a rare strain.
I always knew Adam was exceptional!!
He changed the antibiotic this morning and wants to get a 'good load' on board before they open him up.
Between the two of them, he is covered.
His cardiologist- not to be confused with his cardiac surgeon- came by today too.
She was the 'not favorite' today, in that she wouldn't allow him to go to a step- down room.
He asked "if I bat my eyes and flirt, would it help.'
Her answer was a firm no.
That means no bathroom or shower for a while.
At least he is able to get up and around a bit.
His dad arrived today.
I am sure it has been hard for him to be so far away.
Again, prayers are being felt.
We had visits from the hospital clergy today.
He was kind and graduated from Calvin College in Grand Rapids.
Of course that means he's great..right G-Jan?
Our youth pastor came by too.
He was so good with Adam and his prayers were so helpful.
We'd love continued prayers for strength and peace.
We are beginning to realize the severity of the situation.
It is more than we can take.
Day by day..right?!
Val

Further News

Hello Again!
I am going to try to update daily.
We will see how this goes.
Today was a rough day.
Adam has several wonderful specialists weighing in on his case.
They seem to come in the morning and then order tests.
The infectious disease specialist- who is WONDERFUL!- cam in early.
He was hopeful that Adam could have a few weeks of aggressive antibiotic therapy to try to reduce the infection.
He seemed to feel that would be the best scenario for all.
The cardiology team came and did his esophageal echo.
This was a much better test to measure all of the heart. We were all concerned about the damage the infection had caused.
They also felt this would give a better picture of ALL of the heart.
It did.
Unfortunately, it showed a congenative defect in his aortic valve.
They had uncovered this yesterday, but weren't sure of the extent.
This finding, added to the mitral valve infection, means surgery.
Later today the cardiac surgeon came in.
He is recommending open heart surgery by the end of the week.
He wants to make sure that Adam has the best health when he is operated on, and he is in good health now.
He has had no pain and few symptoms.
Needless to say, we are very scared.
We were so hopeful he'd have some time before such a major surgery.
Adam is hoping to convince his team to delay until Monday.
I will let you know how that goes.
In the meantime, please keep up the prayers.
It is hard for Adam to be treated like an invalid.
He feels pretty good!
In addition, the information he is getting is overwhelming.
He was at work Friday! and just felt tired.
It is hard to go from flu- like to open heart in 48 hours.
Pray for patience and peace for him.
Pray for his medical team.
They are stellar.
They are very aware that Adam is young and has a long life to live.
They are being very conscientious and aggressive.
We love that!
Pray for their continued skill and guidance.
Pray for friends and family.
It is so hard to not know what is going on or what is next.
I can't keep up with it all, and I am here.
Pray for patience and peace.

And, pray for thanksgiving.
We feel covered in prayer.
Adam is getting help in a world renowned facility with amazing doctors.
Friends have visited, brought food, let out the dog and been so supportive.
Others have called for references for doctors and networked to make sure I am asking the right questions to get the best care.
John has been a rock! for both Adam and I.
His medical experience has driven us to ask better questions and push for answers.
He has held me while I cried more times than I can count!
We can't imagine doing this alone.
We are so incredibly thankful for all of this.

So, that's it for today.
I'm gonna sign off to hit it again tomorrow.
Very gratefully,
Val

Adam Update

First I want to thank everyone for their thought and prayers over the past 36 hours. I can feel Adam (and me) covered in prayer. I cannot express how comforting that is in such an unsettling time. He has such great care at St. V's, his admit, his attention from nurses, his doctors, (all of them). He has been a bit of of a test case because of his age and the wide variety of symptoms he has had. There are many specialists who have come to his room to check him out. As my John says, that is a good thing. Many minds focusing on him is a good thing.
Adam's heart tests came back as abnormal. He is currently in CCU and has an infection in at least one of his heart valves. The doctor's have put him on IV antibiotics to try and stall the infection. If they can clear up the infection, it looks as though he will undergo surgery for either valve repair or replacement.
Adam is very sick and very scared. We are thanksful that other than this, Adam is young and healthy. What we need right now is prayer. Prayer for Adam, for his medical team and for me.
I hope this blog makes it easy for me to stay in touch with all of you who care so much, and a place for all of you to be together.
Love,
Val